Genetics and Ethics Links
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Many of the following links are to sites that deal with the Human Genome
Project. In some cases, it is the home page and not the specific ethics
information, but this can be easily navigated. Many of the sites are
interlinked and there are always new sites opening, so you will likely
find new material not listed on this page.
- National Bioethics
Advisory Commission Report (NBAC)
- NYS
Bar Association Committee on Biotechnology and the Law
- Genetics
and Ethics (University of British Columbia)
- Genetics and Public
Issues; NCGR
-
National Human Genome Research Institute (NHGRI)
- Human Genome Organisation (HUGO)
- Interim
Principles
of the Task Force on Genetic Testing
of the NIH-DOE Working group on Ethical, Legal, and Social Implications
of Human Genome Research
- Genome Symposia, in
Risk, the official journal of RAPA, the Risk Assessment & Policy
Association at Franklin Pierce Law
Center
-
The Genetic Privacy Act and Commentary by George J. Annas, Leonard H.
Glantz, Patricia A. Roche, Health Law Department, Boston University School
of Public Health. The Genetic Privacy Act and Commentary is also the
Final Report of a project entitled "Guidelines for Protecting Privacy of
Information Stored in Genetic Data Banks" which was funded by the Ethical,
Legal & Social Implications of the Human Genome Project.
- Council for Responsible
Genetics (CRG)
Comments or Suggestions to Jack Freer jfreer@buffalo.edu
Last Revised: 4/2/98